To scope traditional and contemporary understandings of ‘whānau consent’ in regards to genetic, tissue and organ testing, collection, donation and banking.
To understand how whānau go about gaining ‘whānau consent’ and what processes may support these conversations.
To scope ways in which we can present information about what helps and hinders whānau discussion about consent in an interactive format for whānau to view, supporting them through an informed consent process for genetic-related testing, treatment and/or research.